The World at Arm's Length
About
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Story
Sven has a dream. Once in his life he wants to walk the Camino de Santiago - the Way of St. James. But that seems impossible, Sven has Usher syndrome, a disease which slowly, inexorably robs him of hearing and vision. Profoundly deaf and completely blind since 2010, he can only communicate using a special hearing aid in the spoken language. A hearing aid does not distinguish the sounds - they flow, unfiltered to him - only helpful if Sven's environment is calm and silent and even then it brings exhaustion and headaches. He mainly speaks via tactile gestures, forming words and letters using his hands. He is totally dependent upon the help of his specially trained assistants. Sven has to entrust himself to his assistants, because although he is their "boss", he can't fully perceive his surroundings. They are his eyes and his ears. They guide him, describe his surroundings and translate every communication with the outside world for him. There are less than 50 trained Deafblind ...