Gary Napoli , Bernadette Scarduzio
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Bernadette was born with the biggest disease no one has ever heard of... until now. Watch as she rises from living in obscurity to becoming - in the words of her late father - the face of CMT (Charcot Marie Tooth disease). Affecting over 2.6 million worldwide, CMT is a nerve and muscle disorder that causes it's victims to deteriorate over time. There is no cure. It is a family secret. It goes undiagnosed and misdiagnosed way too often. In some cases, it can be fatal. This project is the first full length film on this subject. It uncovers the truths, frustrations, and misconceptions about CMT. Along the way, there is tragedy, spiritual rebirth, a beautiful female partnership, surgery, and yes, even a few laughs.